Official websites use. Share sensitive information only on official, secure websites. A cross-sectional survey in a sample of youth with chronic conditions in the transition period was carried out.
One hundred eighty-two ambulatory care patients with three conditions participated in the survey. The subscales of the section on satisfaction with care showed excellent internal consistencies, uni-dimensionality and fit to the model of the parent version.
There was no impact of gender and education on satisfaction with care. Associations with age, diagnosis, experiences with care and health literacy affecting the satisfaction with care indicate discriminatory and content validity. Potential applications of the new instrument are evaluations of health care services for adolescents and young adults using self-reports and evaluations of transition programs and interventions such as patient education.
Self-reports are an integral part of health service research in pediatric care [ 6 , 7 ]. While in quality of life QoL research the inclusion of QoL instruments in children has already developed as a standard approach [ 8 ], health service research of children and adolescents with chronic conditions has predominantly included parent or observer reports. An evaluation of interventions targeting youth should include the participants evaluating outcomes of care as their views have been shown to be different from those of their parents [ 6 , 9 , 10 ].
Chronic conditions impact in various ways on the lives of young people, in transition periods in particular when leaving home and engaging in partnerships. Training, education and managing the disease may create an extra burden compared to the usual challenges of growing up [ 4 ]. With a growing number of youth engaging in patient education programs which support the transition process we saw a need for a corresponding self-report version assessing health care satisfaction, utilization and needs from the perspective of adolescents and young adults [ 12 — 14 ].
